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The Joint Epilepsy Council of the U.K. and
Ireland (JEC) is an umbrella organisation which exists to represent
the united voice of the voluntary sector and presents evidence
based views on the need to improve services for people with
epilepsy, their families, and carers in the UK and Ireland.
Our keys aims include:
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To promote improved standards of, and access
to, integrated services for health, education and social
care for people with epilepsy and their carers. |
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To increase epilepsy awareness amongst politicians, civil
servants, service providers and the general public. |
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The JEC provides a way for 22 epilepsy organistions,
operating in England, Wales, Scotland, Northern Ireland and
the Republic of Ireland, to work collaboratively in a focussed,
professional and effective manner, facilitating the sharing
of information, expertise and skills, promoting good practice,
maximising resourses and identifying unmet needs. We work to
unite the efforts of member organisations to reduce stigma,
challenge discrimination and disadvantage and improve the quality
of life for people with epilepsy.
Epilepsy is a neurological condition which
presents in as many as 50 different types. It is diagnosed when
someone has recurrent seizures (also known to many people as
fits, grand mal, petit mal, absences). It is caused by excess
electrical activity in the brain.
Over 456,000 people have epilepsy in the UK.
It is the most common serious neurological condition is a major
long-term disability with similar numbers of people affected
as insulin dependent diabetes.
CLICK
HERE for more about Epilepsy.
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Inquiry into epilepsy services - 26 June 2007
A catalogue of failures in the care and treatment of people with epilepsy has resulted in around 400 avoidable deaths a year and £189 million in wasted funds, according to a report by the All-Party Parliamentary Group (APPG) on epilepsy published today (June 26).
Wasted Money, Wasted Lives, a hard-hitting report, supported by the Joint Epilepsy Council of the UK and Ireland, into the human and economic costs of epilepsy in England, condemns continued government failure to meet the needs of people living with the condition.
The APPG, supported by the JEC, will be carrying out a review of the report over the summer recess and details will appear here shortly.
Please CLICK HERE to read the report in full.
Please CLICK HERE for the press release.
Please CLICK HERE for details of JEC member helplines.
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A new DVD has been developed by the Cornwall Partnership NHS Trust to educate people with epilepsy, carers an professionals on all aspects of using buccal or oral midazolam as an epilepsy rescue medication. The DVD is priced at £10 per copy (inc. p&p). (please link to flyer order form attached.
Click here for the order form. |
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National Epilepsy Week will run from On 1 April 2007, the Epilepsy Research Foundation and the Fund for Epilepsy merged to become Epilepsy Research UK to become the UK’s only national charity dedicated to epilepsy research.
Click here for the press release. |
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