The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186,
Leeds LS20 8WY
Contact: Sharon Wood
General Secretary
Tel:01943 871852

 Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
More about JEC         

 

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Who we are

The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.

Our keys aims include:

  • To promote improved standards of, and access to, integrated services for health, education and social care for people with epilepsy and their carers.
  • To increase epilepsy awareness amongst politicians, civil servants, service providers and the general public.

The JEC provides a way for 26 epilepsy organisations, operating in England, Wales, Scotland, Northern Ireland and the Republic of Ireland, to work collaboratively in a focussed, professional and effective manner, facilitating the sharing of information, expertise and skills, promoting good practice, maximising resourses and identifying unmet needs. We work to unite the efforts of member organisations to reduce stigma, challenge discrimination and disadvantage and improve the quality of life for people with epilepsy.

Epilepsy

Epilepsy is a neurological condition which presents in as many as 50 different types. It is diagnosed when someone has recurrent seizures (also known to many people as fits, grand mal, petit mal, absences). It is caused by excess electrical activity in the brain.

Over 456,000 people have epilepsy in the UK. It is the most common serious neurological condition is a major long-term disability with similar numbers of people affected as insulin dependent diabetes.

CLICK HERE for more about Epilepsy.

 

Special Notices   

JEC News

April 09 edition now available online - click here

JEC National Epilepsy Week Events

A series of lobbying events took place during National Epilepsy Week (18-22 May 2009) when people from across the UK met with politicians to raise awareness of the condition and to demand better epilepsy services.

Events took place at Westminster, the Scottish Parliament, the National Assembly for Wales and Stormont in Northern Ireland. Over 90 politicians from around the UK attended, with many meeting local constituents to hear about their experiences.

Please click here for further details in our press release.

Sharon Hodgson MP

Sharon Hodgson MP opening the JEC lobbying event at Westminster.

All-Party Parliamentary Group on Epilepsy

Inquiry into epilepsy services
(26 June 2007)

A catalogue of failures in the care and treatment of people with epilepsy has resulted in around 400 avoidable deaths a year and £189 million in wasted funds, according to a report by the All-Party Parliamentary Group (APPG) on epilepsy published today (June 26).

Wasted Money, Wasted Lives ,  a hard-hitting report, supported by the Joint Epilepsy Council of the UK and Ireland, into the human and economic costs of epilepsy in England, condemns continued government failure to meet the needs of people living with the condition.

The APPG, supported by the JEC, will be carrying out a review of the report over the summer recess and details will appear here shortly.

Full Report
Press Release
Details of JEC member helplines

 

 


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