The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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National Assembly for Wales Cross-Party Group on Epilepsy

The National Assembly for Wales Cross-Party Group on Epilepsy (NAfW CPG on Epilepsy) held its last meeting in April, chaired by Nerys Evans AM.

The group was launched to work with the All Wales Epilepsy Forum and the Joint Epilepsy Council to raise the profile of epilepsy and campaign for improvements in health services that will improve the lives of the 26,000 people in Wales with the condition. The All Wales Epilepsy Forum (AWEF) was formed as a result of a one day National Epilepsy Workshop held in July 2003, sponsored by the Welsh Assembly with the aim of promoting improved health and social services for people with epilepsy in Wales. The work of the AWEF is supported by the Joint Epilepsy Council, who also provides the Secretariat for the NAfW CPG on Epilepsy.

Membership of the group is open to all Assembly Members to organisations interested and involved in epilepsy care. Members of the NAfW CPG on Epilepsy come from all the major political parties, working together to promote the interests of people with epilepsy, their families and carers.

For further information about membership of the Group or its activities please contact:-
Sharon Wood,
General Secretary,
Joint Epilepsy Council,
PO Box 186,
Leeds LS20 8WY.
Tel: 01943 871852.
E-mail: sharon.jec@btconnect.com

 

Special Notices   

JEC News
October 09 edition now available online - click here

"Best Value, Better Care - Commissioning Epilepsy Services" Tues 23 Feb 2010 - Holiday Inn, London Kensington Forum
The JEC is jointly planning a one-day event for PCT and SHA Commissioners responsible for epilepsy services. High quality epilepsy services can change lives - find out how this can be achieved through effective, targeted commissioning at this one day event from the JEC, the Department of Health and UCB Pharma.
Full Programme
Register

ARTHOUSE Meath
ARTHOUSE Meath is a charitable enterprise that creates and exhibits artworks for sale in printmaking and painting which celebrate the skills and talents of adults who live with severe epilepsy and physical disabilities. ARTHOUSE Meath is part of the Meath Epilepsy Trust in Godalming, Surrey. Click Here for more.....

UK Epilepsy Research Network (UKERN)
Over the past three years there have been discussions about the formation of a UK Epilepsy Research Network (UKERN). The network will be open to all epilepsy researchers with the purpose of raising the standard of epilepsy care, improving the co-ordination and quality of epilepsy research and to facilitate collaboration between epilepsy centres. Meetings have been held for professionals with an interest in epilepsy research around the UK, to decide upon a firm proposal for the structure and management of the UKERN. These were chaired by Professor Tony Marson from the University of Liverpool.

It has been decided that an integral part of the UKERN should be patient and public involvement (PPI) to enable people with epilepsy and their friends, family and carers to have a voice in the network and help determine the direction of epilepsy research in the UK.

As a starting point, UKERN would like to hear views on epilepsy research, the formation of the network and how people with epilepsy can be involved. Epilepsy Action is carrying out this work on behalf of UKERN. You can contribute by completing an online survey - click here. For a paper copy of the survey, contact Margaret Rawnsley at Epilepsy Action on 0113 210 8800.

JEC National Epilepsy Week 2010
National Epilepsy Week 2010 will take place between 13th and 19th June. The topic will be "Epilepsy and the Under-25s". Further details to follow.

Inverness SNP annual conference - October 2009

Aileen Campbell MSP & Public Health Minister Shona Robison

The JEC stand proved popular with delegates.  So much so that it attracted another Cross-Party Group supporter in Aileen Campbell MSP.  Public Health Minister Shona Robison also visited the display staffed by JEC members Epilepsy Connections, Epilepsy West Lothian, Epilepsy Scotland and Quarriers.

 

 


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