The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council

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JEC Member Activities

Many JEC member organisations are planning their own awareness and fund-raising activities during National Epilepsy Week:

June 12th

St Elizabeth's Centre   Bucket collection Asda Harlow 
St Elizabeth's Centre    Drawing Room and Jewellery Projects exhibiting at Cambridge Town & Country Fair
   
   
   

June 13th

St Elizabeth's Centre  Drawing Room and Jewellery Projects exhibiting at Cambridge Town & Country Fair
Epilepsy Scotland Titan Crane zip slide, Glasgow
   
   

June 14th

Epilepsy Scotland Information display, NInewells Hospital, Dundee
Epilepsy Scotland Constituency photo calls with MSPs
Epilepsy Scotland Celebrity coffee mornings / afternoon teas, Glasgow/Edinburgh
Epilepsy Wales Epilepsy information stall at Ysbyty HM Stanley in St Asaph from 9.30am to 12.30pm - contact Lesley Morris (02920 755515)
   
   
   

June 15th

St Elizabeth's Centre   Visit by Henry Moore Foundation 
Epilepsy Scotland JEC exhibition stand, Scottish Parliament
Epilepsy Scotland Celebrity coffee mornings / afternoon teas, Glasgow/Edinburgh
National Society for Epilepsy ‘Epilepsy - what’s next?’ roadshow - 7pm, Britannia Hotel, New Street, Birmingham B2 4RX
Epilepsy Wales Health and Safety Day with Epilepsy information stall 10-3pm  Main Foyer Ysbyty Gwynedd in Bangor - contact Lesley Morris (02920 755515)
Epilepsy Wales Epilepsy information day Twyn community centre, Caerphilly - contact Lesley Morris (02920 755515)
   

June 16th

St Elizabeth's Centre  Greenhouse to be opened by Christine Walkden 11:00 am 
St Elizabeth's Centre  Open Day - 10am-4pm
Epilepsy Scotland JEC exhibition stand, Scottish Parliament
Epilepsy Scotland Epilepsy Scotland parliamentary reception and book launch
Epilepsy Scotland Celebrity coffee mornings / afternoon teas, Glasgow/Edinburgh
National Society for Epilepsy ‘Epilepsy - what’s next?’ roadshow - 7pm, The Crossing at St Pauls, Darwall Street, Walsall WS1 1DA
Epilepsy Connections Evening - information event at Clackmannanshire Community Healthcare Centre, Hallpark Road, Sauchie
Epilepsy Connections JEC exhibition stand, Scottish Parliament
Epilepsy Wales Epilepsy Wales AGM - Welsh National Assembly, Cardiff Bay - contact Lesley Morris (02920 755515)
Epilepsy Wales Epilepsy information stall - ASDA superstore in Queensferry from 9.30am to 6pm - contact Lesley Morris (02920 755515)

June 17th

St Elizabeth's Centre    Friends of St Elizabeth's Afternoon Tea 
St Elizabeth's Centre  Open Day - 10am-4pm
Epilepsy Scotland JEC exhibition stand, Scottish Parliament
Epilepsy Scotland Garden Lobby photo call with MSPs
Epilepsy Scotland Celebrity coffee mornings / afternoon teas, Glasgow/Edinburgh
National Society for Epilepsy ‘Epilepsy - what’s next?’ roadshow - 7pm, Warwick Road Church Centre, 10 Warwick Row, Coventry CV1 1EX
Epilepsy HERE Awareness raising stand - Whitstable Market
   
   
   

June 18th

St Elizabeth's Centre  Greenhouse to be opened by Christine Walkden 11:00 am 
St Elizabeth's Centre  Volunteers Garden Party
Epilepsy Scotland Constituency photo calls with MSPs
Epilepsy Scotland Celebrity coffee mornings / afternoon teas, Glasgow/Edinburgh
   
   
   

June 19th

Epilepsy Scotland Parachute jump, St Andrews 
Epilepsy Scotland Titan Crane Abseil, Glasgow
Epilepsy Scotland National Network Day for Support Groups - an informal networking meeting to discuss key issues and share positive outcomes and good practice. Venue: Dundee Voluntary Action, 10 Constitution Road, Dundee - 11am to 3pm
Epilepsy Connections Storytelling and Drama event for children in Glasgow
Epilepsy HERE Awareness raising stand - Herne Bay Market
Epilepsy Wales Epilepsy information and coffee morning - Church of the Holy Spirit, Ewloe 9.30am to midday - contact Lesley Morris (02920 755515)

June 22nd

Epilepsy Connections "Just for Women" an information day for women affected by epilepsy will be held in our Glasgow office. Discussion topics inlcude bone health and epilepsy and mental health, and the day ends with a chance to try complementary therapies and henna hand painting.

June 13-19th

The National Centre for Young People with Epilepsy (NCYPE) -

Launch of single by NCYPE student band CAOS - contact Kelly O’Haire kohaire@ncype.org.uk 01342 831310

The National Centre for Young People with Epilepsy (NCYPE) -

Media launch of ‘Epilepsy Champions in schools’ report on pilot project - contact Sarah Clifford sclifford@ncype.org.uk -01342 831532

ALL WEEK EVENTS

Epilepsy Action fundraisers are holding Wonga Walks across the UK. Formerly known as the Out in the Open Walks, Wonga Walks have been established to mark Epilepsy Action’s diamond jubilee year. Join thousands of people up, down and across the country and walk to raise awareness of epilepsy and help us walk the equivalent of Timbuktu and back! – That’s the equivalent of 9,240 miles. You can organise your own event or come along to one already happening in your area. View our up to date list of walks or find out about how to organise your own event here: http://www.epilepsy.org.uk/wongawalks/regional

 

 

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd