The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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National Society for Epilepsy (NSE) (residential)
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The National Society for Epilepsy (NSE) is a national charity which aims to make a lasting contribution to the treatment and understanding of epilepsy. We do this by raising awareness, undertaking medical research and by providing specialist medical services, respite, residential care, information and support.

 

At our site in Buckinghamshire, NSE offers world class medical facilities where we see thousands of patients. We provide the best in assessment, diagnosis and treatment and our reputation as a centre of excellence is recognized by the World Health Organisation. 

 

Our residential and respite care offers integrated health and social care for people with severe and complex epilepsy.    Our unique combination of medical expertise, social care and commitment to maximising the life potential of each and every client makes living at NSE a great experience.  NSE also provides domiciliary care and support to clients living in their own home. 

 

Our Information Services provide leaflets relating to many aspects of epilepsy from diagnosis to employment and our team of Epilepsy Information Network (EIN) volunteers help to provide local access to information about epilepsy via information stands in over 150 hospital clinics. We also have information about epilepsy on our website and provide a specialist website for health professionals. 

 

Our accredited confidential helpline receives calls from people with epilepsy, and from their family and friends, GPs, nurses, pharmacists, employers and schools, all wanting to know more about epilepsy.  For those people who want to connect with others with epilepsy we host a web forum that currently has over 5,000 members.  

 

We want people affected by epilepsy to know that we are here so that they don’t feel like they have to deal with their epilepsy on their own. We understand their experiences and through our expertise, research and experience we want to provide support and hope for the future.

 

Chesham Lane,
Chalfont St Peter,
Bucks SL9 0RJ

T: 01494 601300
F: 01494 871927

Helpline: 01494 601400

E-Mail: Online Contact Form
Web:   http://www.epilepsysociety.org.uk

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Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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