The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council
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Cross-Party Group on Epilepsy in the Scottish Parliament

The Scottish Cross-Party Group on epilepsy has the largest MSP support in the Scottish Parliament now with 29 members.

The office bearers are: Joint Conveners: Alasdair Allan MSP and Mary Mulligan MSP, Treasurer: John Farquhar Munro MSP, Secretary: Nanette Milne MSP.

MSP members to date are:

  

The next meeting of the Cross-Party Group will be the AGM and will take place on Thursday, 29th April, 2010 in Committee Room 2 at 1.00pm.  Guest speakers include Minister for Public Health and Sport, Shona Robinson.  There will be a presentation on transition services for young people with epilepsy, showcased by Highland council and NHS Higland.

  

Alasdair Allan
Claire Baker
Robert Brown
Cathie Craigie
Malcolm Chisholm
Helen Eadie
George Foulkes
Murdo Fraser
Marilyn Glen
Trish Godman
Robin Harper
Hugh Henry
Jamie Hepburn
Jim Hume
James Kelly
Frank McAveety
Tom McCabe
Alison McInnes
Duncan McNeil
Des McNulty
Nanette Milne
Mary Mulligan
John Farquhar Munro
Hugh O’Donnell
John Park
Cathy Peattie
John Scott
Richard Simpson
Jamie Stone

For further information about membership of the Group or its activities please contact:-
Allana Parker (Secretariat),
Epilepsy Scotland,
48 Govan Road,
Glasgow G51 1JL.
Tel: 0141 427 4911. Fax: 0141 419 1709.
E-mail: aparker@epilepsyscotland.org.uk


 

 

 

Special Notices   

JEC News
April 10 edition now available online - click here

JEC Launches Epilepsy Call For Action Leaflet
The JEC has launched its call for action leaflet for epilepsy in time for the forthcoming parliamentary elections. We believe better management of care and resources is needed to improve the diagnosis and treatment of epilepsy. This could prevent 400 deaths per year, bring thousands more people into employment and boost the education of young people with the condition. It could also save Government over £22million per year! To find out more click here.

National Epilepsy Week (NEW) 2010
Due to the timing of the General Election at Westminster, National Epilepsy Week 2010 in England, Scotland, Wales and Northern Ireland will take place week commencing Sunday 13th June. The topic is Epilepsy and the Under-25s.

Member organisation Brainwave, in Ireland, will be retaining the usual May dates for NEW 2010 and activities being organised by them in May, and other events being staged in June can be found by clicking here.

"Taking the Tablets" collaboration
JEC members Epilepsy Bereaved, the National Society for Epilepsy, Epilepsy Scotland, Epilepsy Action and the National Centre for Young People with Epilepsy have joined forces under the JEC umbrella to develop an information DVD on the importance of taking anti-epileptic medication.

The ‘Taking the Tablets’ DVD and accompanying booklet offers a programme for people with epilepsy about anti-epileptic drug treatment with views and experiences of people with the condition and two medical professionals.

Speaking on the DVD, Dr Henry Smithson Senior Lecturer in General Practice, Sheffield; “The majority of people who have epileptic seizures are given anti-epileptic drugs to try and reduce or even stop the seizures…Between 60 and 70% of people’s seizures can be stopped by anti-epileptic drugs” Click here to watch the dvd

 

 


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