The Joint Epilepsy Council of the U.K. and Ireland
Registered Charity No. 1104313
PO Box 186, Leeds LS20 8WY
E: sharon.jec@btconnect.com
Contact: Sharon Wood
General Secretary
Tel:01943 871852

Working to meet the needs of people with epilepsy and their families

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Joint Epilepsy Council

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Cross-Party Group on Epilepsy in the Scottish Parliament

The Scottish Cross-Party Group on epilepsy has the largest MSP support in the Scottish Parliament now with 29 members.

 

The next meeting of the Cross-Party Group on Epilepsy will take place on Thursday 28th January 2010, 1-2pm in Committee Room 2. The topic will be epilepsy awareness in schools.

 

The office bearers are: Joint Conveners: Alasdair Allan MSP and Mary Mulligan MSP, Treasurer: John Farquhar Munro MSP, Secretary: Nanette Milne MSP.

MSP members to date are:

Alasdair Allan
Claire Baker
Robert Brown
Cathie Craigie
Malcolm Chisholm
Helen Eadie
George Foulkes
Murdo Fraser
Marilyn Glen
Trish Godman
Robin Harper
Hugh Henry
Jamie Hepburn
Jim Hume
James Kelly
Frank McAveety
Tom McCabe
Alison McInnes
Duncan McNeil
Des McNulty
Nanette Milne
Mary Mulligan
John Farquhar Munro
Hugh O’Donnell
John Park
Cathy Peattie
John Scott
Richard Simpson
Jamie Stone

For further information about membership of the Group or its activities please contact:-
Allana Parker (Secretariat),
Epilepsy Scotland,
48 Govan Road,
Glasgow G51 1JL.
Tel: 0141 427 4911. Fax: 0141 419 1709.
E-mail: aparker@epilepsyscotland.org.uk


 

 

 

Special Notices   

JEC News
October 09 edition now available online - click here

"Best Value, Better Care - Commissioning Epilepsy Services" Tues 23 Feb 2010 - Holiday Inn, London Kensington Forum
The JEC is jointly planning a one-day event for PCT and SHA Commissioners responsible for epilepsy services. High quality epilepsy services can change lives - find out how this can be achieved through effective, targeted commissioning at this one day event from the JEC, the Department of Health and UCB Pharma.
Full Programme
Register

ARTHOUSE Meath
ARTHOUSE Meath
is a charitable enterprise that creates and exhibits artworks for sale in printmaking and painting which celebrate the skills and talents of adults who live with severe epilepsy and physical disabilities. ARTHOUSE Meath is part of the Meath Epilepsy Trust in Godalming, Surrey. Click Here for more.....

UK Epilepsy Research Network (UKERN)
Over the past three years there have been discussions about the formation of a UK Epilepsy Research Network (UKERN). The network will be open to all epilepsy researchers with the purpose of raising the standard of epilepsy care, improving the co-ordination and quality of epilepsy research and to facilitate collaboration between epilepsy centres. Meetings have been held for professionals with an interest in epilepsy research around the UK, to decide upon a firm proposal for the structure and management of the UKERN. These were chaired by Professor Tony Marson from the University of Liverpool.

It has been decided that an integral part of the UKERN should be patient and public involvement (PPI) to enable people with epilepsy and their friends, family and carers to have a voice in the network and help determine the direction of epilepsy research in the UK.

As a starting point, UKERN would like to hear views on epilepsy research, the formation of the network and how people with epilepsy can be involved. Epilepsy Action is carrying out this work on behalf of UKERN. You can contribute by completing an online survey - click here. For a paper copy of the survey, contact Margaret Rawnsley at Epilepsy Action on 0113 210 8800.

JEC National Epilepsy Week 2010
National Epilepsy Week 2010 will take place between 13th and 19th June. The topic will be "Epilepsy and the Under-25s". Further details to follow.

Inverness SNP annual conference - October 2009

Aileen Campbell MSP & Public Health Minister Shona Robison

The JEC stand proved popular with delegates.  So much so that it attracted another Cross-Party Group supporter in Aileen Campbell MSP.  Public Health Minister Shona Robison also visited the display staffed by JEC members Epilepsy Connections, Epilepsy West Lothian, Epilepsy Scotland and Quarriers.