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JEC Members


 


The Daisy Garland
The Daisy Garland aims to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.

 

DRAVET Syndrome UK
Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support.


Epilepsy Action
Epilepsy Action is the UK's largest member-led epilepsy organisation, helping over 365,000 people per year through its services.


Epilepsy Bereaved
Supports bereaved relatives, provides information on SUDEP and other epilepsy deaths; promotes research into the investigation and prevention of epilepsy deaths.


Epilepsy Connections
Provide a range of information and support services to people with epilepsy.


Epilepsy HERE
Epilepsy HERE aims to help, inform and support the public in East Kent on all matters relating to epilepsy and related neurological conditions and to assist people with epilepsy, their families and carers.


Epilepsy Outlook
Epilepsy Outlook provides free and confidential practical support, advice and information for people with epilepsy and their carers in Hartlepool and the Tees Valley Area.


Epilepsy Research UK
Promotes and supports scientific and medical research into epilepsy.


Epilepsy Scotland
Provides information, literature, training, support and advocacy throughout Scotland. Also campaigns for change.


Epilepsy Society (Residential)
Medical research (with Institute of Neurology), assessment (with the National Hospital for Neurology and Neurosurgery) and residential care for adults.

 

Epilepsy Specialist Nurses Association
Provides information about Epilepsy Specialist Nurse services.


Epilepsy Wales
Helping people throughout Wales who have epilepsy, their families and carers, by providing information, support and training.


Gravesend Epilepsy Network
Gravesend Epilepsy Network is an independently registered charity, set up to give direct help, information and support to people with epilepsy and their families.


International League Against Epilepsy (British Branch)
Represents healthcare professionals and aims to promote education and research and improve the treatment and care of people with epilepsy.


Matthew's Friends
Matthew's Friends support and promote the use of dietary treatments for epilepsy and other neurological disorders with the main emphasis being on the Ketogenic Diet for Children.


Meath Trust (Residential)
Residential/day facilities supporting people with epilepsy and learning disabilities.


Mersey Region Epilepsy Association
Provides information and support to people with epilepsy and their families in the Merseyside & Cheshire area.


Quarriers (Residential)
Presidential assessment, respite and residential support for people with complex epilepsy.

 

Scottish Epilepsy Initiative
The Scottish Epilepsy Initiative plans to raise money to contribute to a range of potential projects.


St. Elizabeth's Centre (Residential)
Special school, adults residential home, day care nursing unit.

 

Wales Epilepsy Research Network (WERN)
WERN aims to create a multi-disciplinary and co-operative approach to epilepsy research in order to initiate a programme of research to enhance best clinical and investigative practice in epilepsy.


Young Epilepsy (Residential)
Young Epilepsy (formerly NCYPE) is the UK's major provider of specialist services for children and young people aged 5 to 25 with complex epilepsy and other neurological conditions.

 

Associate Members:

 

Brainwave - The Irish Epilepsy Association
Brainwave provides information, literature, education, support, advocacy and training.